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Session VII: Quality of Life; End of Life

About This Course
This course is pre-recorded so you can take the  course at your own pace. If you have already registered, please access your CE videos & documents within "MY PROFILE" and then "GROUPS" (you will need to sign in to access).


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Session Preview
"You have cancer." To be on the receiving end of those words marks the ending of one life and the beginning of another. This presentation outlines the journey of an SLP with a special interest in HNC being diagnosed with a rare form of salivary cancer (Adenoid Cystic Carcinoma) including the experience of surgery, treatment, and the surprisingly difficult transition to surveillance. This presentation will also provide general information regarding AdCC as well as considerations when working with younger adults undergoing treatment for HNC.



Paula Leslie, PhD, MA, FRCSLT, CCC-SLP
maintains full clinical SLT licenses in the USA (CCC-SLP) and UK (FRCSLT/HCPC) where she is a Specialist Adviser to the Royal College of Speech & Language Therapists in swallowing disorders. Paula started out as an SLT wanting to work only with adults who stammer, worked in almost every area of NHS speech & language therapy, and ended up specializing in decision making and ethics. A stint as a research assistant in stroke led to collaborations, programme design, a decade abroad, and a degree in bioethics.

Her interests include the process of clinical decision making, health professionals’ education and non-traditional routes to advanced clinical training. She publishes, provides support to researchers, and provides continuing education from grassroots to international level and across the health professions on complex clinical decision making, ethics and end of life decisions in vulnerable populations. From this work came the idea for a little book to help those on the frontline and their students:

Leslie, P & Crawford, H. (2017). The Concise Guide to Decision Making and Ethics in Dysphagia. Guildford: J&R Press Ltd.

Her honours include the Honours of the Association Southwestern Pennsylvania Speech-Language-Hearing Association, the American Speech-Language Hearing Association DiCarlo Clinical Achievement Award, the Pennsylvania Speech-Language-Hearing Association Clinical Achievement Award, and Fellow of the Royal College of Speech & Language Therapists.

Julia Porter, MSP, CCC-SLP
Julia Porter is a speech-language pathologist practicing at Franciscan Health Indianapolis working with adults in both acute care and outpatient settings. She has a special interest in treatment of head-and-neck cancer and has been diagnosed herself with Adenoid Cystic Carcinoma, a rare form of salivary gland cancer. Julia has worked with HNC patients prior to her own diagnosis, during treatment, and through survivorship. She has presented to the Northwestern and MUSC SLP Grand Rounds as well as to the Purdue Dysphagia Study Group. Julia has aspirations of obtaining her board certification in swallowing disorders in addition to further post-graduate study. She lives in Indianapolis, Indiana with her husband, Andrew and her beagle, Lilly.  

Paula Leslie, PhD, MA, FRCSLT, CCC-SLP
Financial Disclosure: Dr. Leslie is employed by the University of Central Lancashire and receives a salary. She also receives a stipend from NSS for being an author on ethics.
Non-Financial Disclosure: No relevant non-financial disclosure exists.

Julia Porter, MSP, CCC-SLP
Financial Disclosure: Dr. Porter is employed by Franciscan Health and receives a salary.
Non-Financial Disclosure: No relevant non-financial disclosure exists


The presentation is approximately one hour and twenty minutes.


Learning Objectives
After completing this session you will be able to:

  • Describe three unusual clinical features associated with Adenoid Cystic Carcinoma.
  • Identify the unique circumstances surrounding younger and working individuals undergoing treatment for head-and-neck cancer.
  • Define the term "transition to surveillance" and application of this concept to long-term survivorship within the younger head-and-neck cancer population .


Certificate of Completion

  • You will receive your certificate for this course upon completion of the online Learning Assessment. You will find your certificate within your profile under "Professional Development". 
  • Your ASHA CEU credits will be processed through the American Board of Swallowing and Swallowing Disorders. Reporting dates are the following: May 30th, June 30th, July 31st and September 30th. After September 30th, reporting dates will be at the end of every quarter. 

This course is offered for .10 ASHA CEUs (Advanced Level; Professional area). 


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